ECHO - Connecting the Children's Heart Community

Parent-to-parent support

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Parent-to-parent support

Parents of heart children are often best placed to support other parents as they know what you’re going through. We train and support parents to provide emotional and practical help in hospital, on the phone, by email and in the community.

We work with parents who are keen to help others in a similar situation – parents who are a little further along the heart journey and have lots to offer.

Speak to an ECHO parent

If you’d like to speak to an ECHO parent, please contact us and we’ll put you in touch. We’ll get back to you as quickly as possible, but please be aware it can take up to 5 days.

Call us on 020 7998 4710 or email here.

On Facebook

Do you feel like no one understands what you’re going through? We can put you in touch with a community of people who do, and who can offer reassurance and support.

ECHO oversees a private Facebook group for parents and carers of heart children. With over a 1,000 friends, it gives you a safe space to meet other parents and carers online, to ask questions and share thoughts and feelings. The group is monitored by ECHO staff to ensure appropriate use.

Ward visits at Evelina London Children’s Hospital

Our trained parent volunteers visit families on the wards of the Evelina London Children’s Hospital to offer a listening ear, provide practical & emotional support and signpost other help that’s available from ECHO. Our parents visit whenever they can, but if you’d like to request a visit from a parent volunteer please email us. We can’t guarantee a visit, but we’ll do our best to try.

ECHO Parent's Talks

We run a group for all parents and carers of children currently being treated for a heart condition at the Evelina London Children’s Hospital. These informal sessions are held on the first Tuesday of every month at 2pm in the Parent’s Room on Savannah Ward. It’s an opportunity for you to ask questions and find out information whilst enjoying some light refreshments free of charge.

These sessions are run by ECHO’s Cardiac Support Worker and an ECHO parent volunteer.

Connect with heart parents near you

We can help to try and put you in touch with heart parents who live near you or who are living with the same condition. Whilst we can’t always promise there are families nearby, we’ll do our best to find out for you.

Support for dads – Walking In Our Shoes (new)

If you’re a dad or granddad caring for a heart child, please join the ‘Walking in our shoes’ group. We know, from speaking to many male carers in the heart community, how difficult it can be supporting the family when your child has a heart condition and that it isn’t always easy to talk about it. The group walks are organised by local volunteer dads in their community and will give you the chance to talk to and get to know other heart dads or carers in a relaxed setting, away from the hospital environment.