At ECHO we have been advocating for our members regarding plans to change heart (cardiovascular) and lung and breathing (respiratory) services for patients.
Now it is your turn to give your views.
These proposed changes are being discussed jointly in partnership by Guy’s and St Thomas’ NHS Foundation Trust, Royal Brompton and Harefield Hospitals, Evelina London Children’s Hospital and partners King’s College Hospital NHS Foundation Trust and King’s Health Partners.
The partners want to create a global powerhouse for heart and lung medicine and research in London, providing the best possible patient care and experience. This includes the development of a new purpose-built clinical academic facility on the St Thomas’ Hospital and Evelina London Children’s Hospital site.
They are now inviting patients with a heart or lung condition, their carers and families, to help explore improvements in the way heart and lung care is provided in the future.
This is an opportunity for all ECHO members to design the kind of care you and your family and other patients will receive in the future.
Date: Thursday 13 May, 6.30pm to 8pm
This online event is for adults, parents and carers and children and young patients who have a heart or lung condition, and their parents or carers. It will:
Register for the introduction to the partnership event on the Eventbrite website.
Starting in May 2021, Verve Communications are running online workshops for parents and carers of children receiving care for a heart or lung condition.
During these workshops they will talk about your experiences of heart and lung care at the hospital or closer to home, and your views on how these services can be delivered in the future. Each workshop will focus on a particular type of care including:
You are welcome to take part in as many workshops as you like.
This Autumn, Playing ON Theatre Company will host a series of weekly workshops for children and young people (age 7 to 25) receiving care for a heart or lung condition. Playing ON Theatre Company will work with you to explore your experiences of receiving care at hospital or at home, and your views on what heart and lung services could look like in the future.
PlayingON use games, improvisation, instant writing, visualisation and much more to create performances inspired by the experiences of children and young people.
Register your interest in these events to receive updates about planned dates:
Children age 7-11: Register your interest here: https://bit.ly/3f7DkMA
Children and young people age 11-16: Register your interest here: https://bit.ly/3cbXl2w
Young people age 17-25: Register your interest here: https://bit.ly/398nVYo
Starting in May 2021, Verve Communications are running online workshops for patients receiving care in adult congenital heart disease services. Each session will focus on different types of care:
To find out more about the partnership and how to register for these events click here
If you are not available on these dates, but would like to receive information about other ways to take part, or you have questions about these events, please contact: gst-tr.rbhkhp@nhs.net
You can find more information about the partnership and how to register for all upcoming events on the GSTT website: https://www.guysandstthomas.nhs.uk/about-us/improving-care-for-patients-heart-lung.aspx