This is an ongoing project in which children, young people and their parents are being asked what they think about the ways they are informed and cared for when having heart surgery.
Before the pandemic, researchers were also observing how they are cared for and involved in decisions about surgery.
Healthcare professionals want to know more about what children and parents think about having heart surgery. The aim is for everyone involved to know more about the kinds of information and care that children, young people and their parents find work well.
The project is being carried out by staff at the UCL Institute of Education, Evelina London and Guy’s and St Thomas’ NHS Foundation Trust and Great Ormond Street Hospital for Children.
ECHO members can get involved by participating in an online survey run by the researchers.
There are 2 different surveys – one for children and young people aged 6 to 15 years who have had heart surgery or major cardiac procedures (such as MRIs) in the past 2 years, and one for parents/carers of children and young people aged 6 to 15 years who have had heart surgery or major cardiac procedures (such as MRIs) in the past 2 years.
Results from this survey will help the hospital staff to know more about the kinds of care young patients and their parents find helpful.