77 ECHO members from across the country, all supported by ECHO and treated by the Evelina London Cardiac Team, are featured in the #1in100 music video appeal to raise awareness and vital funding to help other children with heart conditions.
Families are sharing their personal experience of Congenital Heart Disease (CHD) in order to support new families receiving a diagnosis and showing the public the story behind the journey.
The children in this video have required lifesaving heart surgery or treatment throughout their lives and have often needed to be away from home for extended periods of time, adding pressures to the lives of those supporting them. Sadly, four of the children in the video have passed away, leaving us all too soon- we will remember them always.
The 77 children featured in the appeal video I Am Home, sung by Byron and the Stratford East Singers, were connected by Evelina Cardiology Mum Caroline. Together, the families aim to raise £10,000 as well as promote awareness of CHD and the journey families take.
We are delighted that Caroline wanted to bring so many people together with this project and that Byron has chosen to support the ECHO heart community through his lyrics. This beautiful song encapsulates the feelings many family members have when their child is in a vulnerable situation, and the I Am Home title reminds us of the second family ECHO becomes to many cardiac families at times of unimaginable stress and worry.
We thank the families for taking part, for sharing their photographs and for the opportunity to let others see into the CHD community.