At ECHO we understand how uncertain you can feel when you find out that your child will be born with congenital heart disease. We are here for you – on this page you can find some helpful information and resources.
You’ll need to join ECHO before you can access our support services.
A guide to some of the most frequently asked questions about your care and delivery.
read the faqs
Some useful links and resources about taking care of yourself and your baby while in NICU (Neonatal Intensive Care Unit)
find out more
ECHO Antenatal Class volunteer Amanda tells her story of her daughter Tilly’s diagnosis, surgery and recovery, and gives some advice on what to expect and bring with you when you go to hospital for your child’s treatment.
hear from amanda
Some messages of support and advice from parents in the ECHO heart community.
read messages of support
Suggestions of what to pack for your hospital stay.
What to pack for hospital
ECHO member Chloe recalls her own experience in the Antenatal Ward at St Thomas’ Hospital, to give an introduction and some advice about your stay.
read chloe's introduction
Photos from NICU & PICU, provided by parents
Photo Gallery
Advice on how to support your expectant partner
Advice on supporting your partnerBy joining ECHO you will be welcomed to a community of shared experience and understanding - we have a private online group which you will have access to, plus e-newsletters and other resources.
JOIN THE ECHO COMMUNITYIf you have any questions or want to chat to us, get in touch and we are here to help.