Discover the powerful journeys of families living with congenital heart conditions through our ECHO Stories video series. Each story offers heartfelt insights, hope, and inspiration from those affected and their loved ones.
George is nine years old and was born with complex congenital heart disease — six heart defects in total. He has undergone three open heart surgeries, four catheter procedures, and numerous other interventions and scans.
George’s parents, Hannah and Rick, share the unpredictability of his condition and how it impacts their family life. George opens up about how his heart condition limits the sports he can play — but also earns him a free pass to Disneyland!
George’s brother Alfie is part of ECHO Teens, a community that offers him support and understanding through shared experience.
Eliana is five years old and was born with aortic stenosis. After surgery, she now has aortic regurgitation and will require further surgery in the future.
Eliana’s parents Emma and Jake, along with her granddad Eddie, share their family’s experience of navigating her diagnosis and the ongoing journey with ECHO. They open up about their hopes, fears, and feelings as they look toward the future.
Trigger warning: this video contains references to themes of child loss and bereavement, which may be distressing.
Marnie was born with hypertrophic cardiomyopathy caused by Noonan’s Syndrome. She sadly passed away at six months old.
Parents Amy and Nick share Marnie’s journey, discuss organ donation, and offer heartfelt advice to other families facing similar experiences. They also speak about the incredible support and growth inspired by the amazing #TeamMarnieMoo fundraising community.
Hassan is a nine-year-old born with congenitally corrected transposition of the great arteries.
His parents, Yasmin and Zee, share the story of Hassan’s birth and the unexpected comfort the call to prayer brought to their newborn. They reflect on their early reluctance to talk about his condition — and how they’ve grown into a place of strength and openness, encouraging Hassan to embrace and share his story too.
As part of our ECHO Stories series, we’re spotlighting Ming shares what it meant to support her sister during her pregnancy, when multiple heart tumours were found in her niece.
In a series of moving voice recordings, Ming reflects on being part of the extended family during a difficult time, reads a letter based on one to her father, and shares a poem she wrote for her niece — a powerful expression of love and healing.
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