When we found out that my wife was pregnant with our third child, we had no idea what this baby had prepared for us. I regret not being there with my wife, Gaby, when the scan revealed some irregularities with our babyβs heart; I wanted t...
ECHO advocacy work includes being part of the ongoing NHS England Standards Specification for CHD Review, which is tasked with reviewing the UK wide CHD surgical service to ensure that all units are of a high standard.
We also represent mem...
Extended family and friends are a hugely important part of the childrenβs heart community. We know how much you care, and how much support you give to your loved ones whilst they deal with their childβs heart condition and the situation...
Every year the Brace family get a team of family, friends and contacts to run the Milton Keynes Half Marathon/Marathon, in memory of the very special Marnie Brace.
Canβt find what you’re looking for in our information and resources? Send us your questions and we’ll do our best to get answers for you.
Please note, this facility is not to be used for health concerns or any kind of emergenc...
Perhaps youβre worried about what will happen to them or you miss your parents when theyβre away from home? We can help you cope by providing information & support, and introducing you to other heart siblings if you want to talk and...
Thank you for giving your time and skills as an ECHO volunteer!
We appreciate the time and skills you have given to ECHO as a volunteer. Please let us know a little bit about your time with us, this will help us to capture your experience a...
If you want to volunteer with ECHO please register your details below, a member of our team will get in touch soon.
In the meantime if you have any questions or wish to speak with someone please contact ECHO at hello@echo-uk.org
If you are ...