ECHO advocacy work includes being part of the ongoing NHS England Standards Specification for CHD Review, which is tasked with reviewing the UK wide CHD surgical service to ensure that all units are of a high standard.
We also represent mem...
Extended family and friends are a hugely important part of the childrenโs heart community. We know how much you care, and how much support you give to your loved ones whilst they deal with their childโs heart condition and the situation...
At ECHO we are excited to be working to create an activity bookletย for heart children between the ages of 2 and 10 who are staying in hospital. Can you share your thoughts to help us bring this booklet to children in hospital?
Every year the Brace family get a team of family, friends and contacts to run the Milton Keynes Half Marathon/Marathon, in memory of the very special Marnie Brace.
Emilia Di Giovanna was born on 28th October 2014 at St Thomasโ Hospital. Emilia was born with half a heart, a condition known as hypo plastic left heart syndrome (HLHS), with an unusual complication of pulmonary vein drainage which is kno...
There are lots of great ways to fundraise from sponsored walks to office raffles, cake sales to once-in-a-lifetime travel challenges. You can even create your very own bespoke fundraiser!
We receive no government or NHS funding and rely ent...
The initial discovery
Alfie’s condition was diagnosed at week 20 of my pregnancy at King’s hospital in London where I was going for regular scans because I was having identical twins. At this time, the hole was small and we were...
Iโve been volunteering now for about 8 years and help by sharing my own experience with other expectant mums and dads at antenatal classes. Iโm glad to be able to share our story as I remember how helpful that was for us at the beginnin...
Discovering your child has a potentially life threatening heart condition is one of the hardest things any parent has to face. Whatever youโre going through, youโre not alone. The ECHO Community is here to support you.
See below to find...