Over the years, the resources ECHO has helped to create have proved invaluable to both parents and children. Our aim is to help answer parents’ questions and, where possible, to give reassurance and comfort to heart children and young peo...
Josie’s Story: “Archie was born on the 28th March 2018 he was born with hypoplastic right heart syndrome. He underwent his first heart surgery at just 6 days old where he had a bt shunt. This was the first of 3 surgeries we we...
It’s a weird feeling facing the prospect of having an operation that you’ve had before yet have no memory of!! When I was 10 weeks old I went up to Guys with my parents for an outpatients appointment and ended up staying for two...
Hi there. My name is Hannah and I am one of the many people that suffer from rare heart diseases, my disease is Ebstien’s Anomaly. I was born on the 23rd May 1995, even though I was meant to be born on the 21st July 1995. I am 12 years ol...
I was born in the tail end of the seventies and the youngest of three children. I’ve been told that it was when I was five days old (and just about to go home) that one of the doctors noticed a murmur… It seems strange to me now that it...
Work experience student Stevie talks about her time working at ECHO, including a zip wire, King's College London meetings and fundraising!
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