Search
Emilia Di Giovanna was born on 28th October 2014 at St Thomas’ Hospital. Emilia was born with half a heart, a condition known as hypo plastic left heart syndrome (HLHS), with an unusual complication of pulmonary vein drainage which is kno...
Archie was born on Saturday 25th March 2006 after a normal pregnancy and weighed a very healthy 8lb oz. He was born with ‘Talipes’ which basically meant that his right foot was pretty much at right angles with his leg.
After a few days ...
ECHO provides a wide range of support services for children with heart conditions and their families. We need your help to carry on doing what we do.
Every ECHO family has a unique story, but they all know what it is to be touched by congen...
The initial discovery
Alfie’s condition was diagnosed at week 20 of my pregnancy at King’s hospital in London where I was going for regular scans because I was having identical twins. At this time, the hole was small and we were...
I’ve been volunteering now for about 8 years and help by sharing my own experience with other expectant mums and dads at antenatal classes. I’m glad to be able to share our story as I remember how helpful that was for us at the beginnin...
At ECHO we are excited to be working to create an activity booklet for heart children between the ages of 2 and 10 who are staying in hospital. Can you share your thoughts to help us bring this booklet to children in hospital?
Our charity was founded 40 years ago, in 1983, by Dr Michael Joseph, the first Paediatric Cardiologist at Evelina London, together with parents of children with heart conditions. The charity came about from a desire to provide families with...
What an amazing month February was, where as a community we wore red and marked #NationalHeartMonth and Congenital Heart Disease Awareness Week!
ECHO families have joined together to thank the Evelina London Cardiology team by sharing photos of their heart heroes for a large banner display in front of the ECHO office, opposite the hospital.
Through its new Walking in Our Shoes initiative, ECHO looks to encourage Dads and male carers to set up their own local walking groups.