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When we found out that my wife was pregnant with our third child, we had no idea what this baby had prepared for us. I regret not being there with my wife, Gaby, when the scan revealed some irregularities with our baby’s heart; I wanted t...
ECHO advocacy work includes being part of the ongoing NHS England Standards Specification for CHD Review, which is tasked with reviewing the UK wide CHD surgical service to ensure that all units are of a high standard.
We also represent mem...
Extended family and friends are a hugely important part of the children’s heart community. We know how much you care, and how much support you give to your loved ones whilst they deal with their child’s heart condition and the situation...
At ECHO we are excited to be working to create an activity booklet for heart children between the ages of 2 and 10 who are staying in hospital. Can you share your thoughts to help us bring this booklet to children in hospital?
Every year the Brace family get a team of family, friends and contacts to run the Milton Keynes Half Marathon/Marathon, in memory of the very special Marnie Brace.
Emilia Di Giovanna was born on 28th October 2014 at St Thomas’ Hospital. Emilia was born with half a heart, a condition known as hypo plastic left heart syndrome (HLHS), with an unusual complication of pulmonary vein drainage which is kno...
Discovering your child has a potentially life threatening heart condition is one of the hardest things any parent can hear.
Children with heart conditions often face an uncertain future, where medical tests and treatment become normality. M...
One of the youngest competitors in a recent, aptly entitled “Run for the Children” Fun Run in Bexley was our son, Ewan. As he was only five months old at the time he enlisted my help as “pram pusher” to get around the course. We dec...
There are lots of great ways to fundraise from sponsored walks to office raffles, cake sales to once-in-a-lifetime travel challenges. You can even create your very own bespoke fundraiser!
We receive no government or NHS funding and rely ent...