ECHO Evelina Children's Heart Organisation
 Find out more at : www.echo-evelina.org.uk

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Hello from Team ECHO!

Important update regarding children's cardiac services

NHS England has announced action to deliver consistent and high quality services now and for the future to the CHD community. 

We have been reassured that children from across England will be given access to the very best possible surgical treatment and care. We are also encouraged that this will follow them into adulthood as the standards include transition services- giving children, young people and adults truly joined up care.

ECHO will continue to represent the views of parents, carers and young people, both at national and local meetings and events, and will continue to work with the medical professionals who deliver outstanding services at Guy’s and St Thomas’ NHS Foundation Trust while they continue to develop their plans to ensure the standards are fully met and maintained.

Whilst we welcome the news that occasional practice will stop and procedures and surgery will only take place in hospitals that can meet the standards, we appreciate that families, parents, patients and staff at units who may not be offering surgery in the future will be affected by the announcement. We urge all those people to seek any support required, both medical and emotional, over the coming months.

ECHO have supported the NHS England review of children’s and adults congenital cardiac services over the past four years and welcome the NHS England set of standards for congenital heart surgery.

We want to reassure families that nothing will change overnight and that we will work with NHS England and other organisations to ensure patients, parents and carers have access to relevant and up to date information.

Further information is available on our website

 

We need YOUR help!

We know that leaving the hospital can be a worrying time for families - which is why ECHO fund discharge folders for families as they leave the Evelina London Children's Hospital.

In partnership with the Evelina we are producing a new booklet to provide families with more detailed information when they are discharged from hospital - and for use over a longer period of time.

We need parents/carers to help us ensure the information is relevant - and to tell us what else is needed!

Do you have time to read and comment on the new discharge information? If so we want to hear from you: admin@echo-evelina.org.uk

 
 

Good times at the ECHO Family Fun Day

Thank you to everyone who joined us for the ECHO Family Fun Day on 26th June. 

During the morning children and young people took part in all sorts of activities from cuddling farm animals, arts & crafts, planting seeds and even a treasure hunt. Meanwhile the adults took part in two workshops, one focused on personal storytelling and the other discussing the ECHO story and plans for the future. 

We then came together for a picnic and spent the afternoon meeting new friends, catching up with old ones and spending time as a family. 

If you attended we'd really appeciate hearing your thoughts on the day - please spare a couple of minutes to complete this online survey

 

ECHO are recruiting!

ECHO are recruiting a Fundraising and Development Officer.

We are looking for somebody who enjoys the art of crafting compelling funding applications, a focused team player who will work strategically, develop relationships and enjoy the responsibility of leading the charity’s trust, company and foundation fundraising programme with a minimum of two years experience.

To apply please send your CV and a covering letter highlighting why your application should be considered via the charity job website

Closing date: 12th August 2016

 

Are you brave enough? ...

 
ECHO FIREWALK

Thank you for reading our latest news

Best wishes,

Team ECHO - Samantha, EmmaSiobhan and Diana