Thank you for your interest in attending our Paediatric Cardiology Parents’ Group. The group aims to provide a space for parents of children with a heart condition to share experiences and ideas with one another around supporting their child and family’s emotional well-being.

Before attending, please read the following information. This will help us ensure that the group is the right fit for you and your family and that we can support you appropriately on the day.

• All parents/carers of children under the care of an Evelina London Consultant Cardiologist are welcome.
• The group will be led by Dr Niki Gregg (Clinical Psychologist) and Samantha Johnson (Chief Executive at ECHO) and supported by our colleagues from across the Evelina and St Thomas’ Cardiology Teams and Evelina Children’s Heart Organisation.
• The group will run online via MS Teams.
• Please mute your microphone when not speaking. It is entirely up to you whether you choose to turn your camera on.
• Please do not make any audio or video recordings or take any photographs during the group. We will also not be recording or photographing the group.
• Please do not share information about anybody else taking part to anyone outside of the group. It is absolutely fine to share the themes, ideas and tips shared during the group, however please do not share any information that could identify the experience, opinions or details of any other individual.
• This group is for parents and carers only. We appreciate you may need to have children who are not at school or nursery present in the background. This is fine. We just ask that you are mindful of what they may overhear and turn off your camera if you prefer that they do not appear on screen.
• We are unfortunately not able to offer specific advice/support about individual children’s psychological or medical wellbeing. If you feel that you or your child would benefit from individual support from the psychology or medical teams, please discuss this with your child’s Consultant Cardiologist.
• A note will be made in your child’s medical record that you have attended the group. Details of discussions within the group will not be documented unless we discuss this with you first.
• Should we get cut off during the group, we will call you on the telephone number you have provided afterwards. Should we be concerned about your well-being and unable to get in touch we may arrange for a welfare check to make sure you are OK.
• PLEASE NOTE: We are not an emergency service and do not read referral forms on daily basis. If you have urgent concerns about mental or physical health, please contact your GP to request an urgent on the day appointment or call 111 for urgent advice.  If it is an emergency and/or you are concerned about immediate safety, please call 999 or attend A&E.

If you decide that you would like to come along, please complete the referral form below: