Being the sibling of a child born with CHD can be really special, but it can also feel challenging at times.

This year, we’re creating a resource to support children who have a brother or sister who is born with CHD – this will be for under 10’s and will be a storybook.

We want everyone to know they’re not alone and that there are many other incredible siblings, just like you, who understand what it’s like.

Calling all siblings aged 7-16 to join our workshop to help us create our new storybook. 

Complete the form below to register to take part.

When is the workshop?

Saturday, June 13th, 2026 at 10.30-2.30

Where is it?

Ronald McDonald House Evelina

Who can come?

Children and Young people aged 7-16 with heart conditions and their siblings with a parent or carer

What will happen on the day?

10:30–10.45 Arrive and settle in.

10.45–11:00 Intro and warm-up activities.

11:00–12:00 Part 1 – The book. Sharing experiences of being a sibling, then looking at sections from the book to discuss and provide feedback. (Separate session for patients and parents/carers.)

12:00–12:45 LUNCH

12:45–2:00 Part 2 – Siblings take over! With support from a graphic artist, you’ll get hands-on in helping design the accompanying wellbeing pack to support young people just like you. (This session will be inclusive to siblings, patients, and parents/carers)

2:00–2:20 Sibling photos – which might appear in the book! (You will also get a digital copy)

2:20–2:30 Round up and end of workshop.

*As part of this, we’d love to include an image of as many of our amazing heart siblings alone and with their heart siblings as possible in the resource. A professional photographer will be there on the day to take the pictures, so as well as you featuring in the resource, you’ll also get to have a lovely photo of you and your sibling(s) to keep.

There will also be an appeal after the event for photos you might have from home, so watch this space