At ECHO we understand that being a teenager with a heart condition can be pretty tough.  It can interfere with all the things you like doing – going out, having fun with friends – as well as some of the things that perhaps you don’t, like taking exams.

That’s why we set up ECHO Teens so you have a safe space to let off steam and have some fun too, with special events and activities designed especially for you.

You’ll meet other teenagers in similar situations, so it’s a great place to make friends and share experiences if you want to. There’s no pressure. Just take it at your own pace. ECHO Teens is here to support you.

You’ll know all about the challenges of growing up with a heart condition but it’s different again imagining life as an adult with CHD.

ECHO Teens provides a bridge, helping young adults with support and advice so you can take those important next steps with confidence.

You might want to know more about travelling abroad, benefits, disability rights, starting work or further education – we can usually help with all these things, but if we can’t we’ll always signpost a professional who can.

Also, we offer a range of activities and events designed specially with young people in mind, providing a safe space to access information, have some fun and meet others who share your experience.

Who can become a member?

Anyone between the ages of 11-18 with a heart condition, who’s been treated by Evelina London’s hospital network, can join. We also welcome the sisters or brothers of heart teenagers (from the same age group).

How do I join?

It’s free to join. Just fill in this form and we’ll get in touch.

Benefits of becoming a member

• Enjoy meeting other heart teenagers and siblings
• Have fun, meet new people and learn new skills
• Share your experiences and recommendations
• Learn more about your heart condition
• Inspire younger ECHO Teen members
• Receive regular updates

Events we’ve organised in the past include:

• Climbing up and over the 02 Arena
• Filmmaking on mobile phones
• Transition days
• Treasure hunts in London
• Trips to the Zoo
• Overnight camping trips